Nursing Management of Children with Hemophilia according to Basic Standards

Document Type : Original Article

Authors

1 , Assistant Lecturer of Pediatric Nursing Faculty of Nursing, Tanta University

2 Professor of Pediatric Nursing, Faculty of Nursing, Alexandria University,

3 , Assistant Professor Faculty of Nursing, Tanta University

4 Lecturer of Pediatric Nursing Faculty of Nursing, Tanta University

Abstract

Hemophilia is an inherited bleeding disorder in which there is a deficiency of one of the factors necessary for coagulation of the blood. Nursing care for children with Hemophilia should be provided based on established standard of care .
This study aimed to identify the effect of established basic standards for nursing management of children with hemophilia. All nurses working in Pediatric Hematology and Oncology unit at Tanta university hospital were included in the study with total number of 25. Structured interview sheet was used to assess nurses' knowledge and observation checklist to assess their actual performance in providing direct care for those children before , immediately, and after three months from the standard application.
The results showed that , total scores of nurses' knowledge pre standard application were fair 68% and poor 32%. Where as, immediately and after three months of the standard application; the total score for all nurses' knowledge was good. As regards total practice score of nurses before the standard application; it was found that , 60%, were fair and 40% poor. After three months , the majority of them (80% ) were good and 20% were poor in their performance with statistically significant difference (p=0.001)
In conclusion: there was a significant improvement in nurses' knowledge and performance after the standard application. The developed standards should be available in Pediatric Hematology units in order to improve the quality of pediatric nursing care.
Recommendations: developing a process improvement team for developing standards and criteria of practice on the basis of structure, process and outcome. A special system for awarding, accreditation and certification should be taken into consideration to motivate nurses' participation and enrollment into the training and education programs which are conducted in the work place