Satisfaction and Barriers Regarding Community-Based Rehabilitation Services among Caregivers of Children with Cerebral Palsy in Minia Governorate.

Document Type : Original Article

Authors

1 Lecturer of Community Health Nursing, Faculty of Nursing. Minia University.

2 Lecturer of Pediatric Nursing, Faculty of Nursing. Minia University.

3 Lecturer of Pediatric Medicine, Faculty of Medicine. Minia University.

4 Assistant Professor of Community Health Nursing, Faculty of Nursing, Minia University.

Abstract

Background: Community-based rehabilitation (CBR) service is a community development
strategy designed for persons with disabilities and their families. Measuring caregivers’
satisfaction is a recommended approach to assess the overall quality of rehabilitation services
and decrease the barriers that hinder reaching them. Aim: To assess satisfaction and barriers
regarding CBR- services among rural and urban caregivers of children with cerebral palsy in
Minia Governorate. Study design: A descriptive cross-sectional study was utilized. Sample: A
purposive sample of one hundred caregivers. Setting: The current study was conducted at three
governmental rehabilitation centers which provide services for Minia Governorate .Tools of data
collection: Three tools were utilized to collect data; 1st one: A structured interview questionnaire
covered two parts (Socio-demographic data of caregivers, demographic and medical data for
child, the 2nd tool: Caregivers’ satisfaction regarding CBR- services questionnaire, and 3rd tool:
Barriers to Caregivers’ Satisfaction with CBR Services. Results: It was revealed that 78.0% of
rural caregivers and 62.0% of urban caregivers were dissatisfied with CBR services. Significant
predictors of dissatisfaction among rural caregivers included financial and transport constraints,
long wait times, lack of communication, and family/community support. Meanwhile, urban
caregivers cited financial constraints, lack of support, long wait times, and communication
issues. Conclusion: There are high levels of dissatisfaction with CBR services, and many
reported barriers hinder caregivers of children with cerebral palsy in both urban and rural areas
from accessing these services. Recommendations: Offering training programs for nursing staff
to improve their communication skills with disabled children and their families, raising
community awareness about available CBR services, and increasing the number of rehabilitation
centers at the governorate level while providing equipped transportation for patients.

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History

  • Receive Date: 07 October 2024
  • Accept Date: 07 October 2024

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