Effects of Caregivers-Centered Package on Functional Balance and Activities of Daily Living in Children with Cerebral Palsy: Randomized Control Trial

Hashad, Reham Elsaeed; Abdallah, Asmaa A.; Ahmed, Ahmed S.; Wady, Doaa ElsayedAbdelAziz; Said, Doaa Abdelgawad

doi:10.21608/tsnj.2024.341006

Effects of Caregivers-Centered Package on Functional Balance and Activities of Daily Living in Children with Cerebral Palsy: Randomized Control Trial

Document Type : Original Article

Authors

¹ Lecturerof Pediatric Nursing, Faculty of Nursing, Mansoura University, Egypt

² Lecturer of Community Health Nursing, Faculty of Nursing-Mansoura University, Egypt

³ Assistant Professor of sports kinesiology, Faculty of Physical Education, Damietta University, Egypt

⁴ Assistant Professor of Pediatric Nursing, Faculty of Nursing, Mansoura University, Egypt

10.21608/tsnj.2024.341006

Abstract

Background: Children with cerebral palsy require interdisciplinary treatment due to their
multifunctional deficits. Consequently, high levels of stress, worry, and dread of the unknown are
common among caregivers. Therefore, understanding cerebral palsy is crucial for caregiver
adjustment and role preparation. But there is a dearth of scientific data on the most effective way to
teach caregivers. The aim of this trial was to evaluate the effects of caregivers-centered package
on functional balance and activities of daily living in children with cerebral palsy. Design: A
randomized controlled trial was implemented in out- patient clinic affiliated with Mansoura
University Children’s Hospital. A total sample size of 80 caregivers and their children was recruited
using a randomization technique. Data collection tools were four: a structured interview
questionnaire sheet for caregivers’ knowledge regarding CP; caregivers’ care reporting sheet;
cerebral palsy quality of life scale for children; and pediatric balance scale. Results: It was evident
that the study group who received educational package demonstrated highly statistical
improvements regarding cerebral palsy knowledge and practice (P≤0.001), compared to the control
group results, which showed insignificant differences (P=0. 246and P=0.06, respectively) at the
three study phases. Conclusion: The educational package for caregivers had an improving effect on
their knowledge and practice regarding cerebral palsy, in addition to its positive effect on their
children's quality of life and functional balance. Recommendation: Developing and implementing
an educational initiative for mothers regarding care of their children with CP continuously